Sunday, July 15, 2012

Katana's First Flight for life.

So Wednesday ended with Katana complaining of a headache and my usual response of go to sleep and it will go away.  But when she was still asleep at 11 on Thursday I began to worry.  She woke up a for a little bit, long enough to ask her sister the same question a few times.  Then she went back to sleep for few more hours.  Which prompted a call to the Neurosurgeon.   His nurse was as concerned as I was and suggested that if we couldn't perk her up with some fluid that we needed a ct scan done.  So after 2 hours of pushing Gatorade she still wasn't acting like herself. So off to the hospital we went.  They did a CT scan and found that her right ventricle was partially collapsed again.  The Neurosurgeon saw the results and wanted her in Kansas City ASAP.  They immediately put Children's Mercy  in the air to come and get her.  Right now we are home we are not sure if it was a glitch in her shunt or if her shunt needs reprogrammed.  We see our Dr. Igbase August 1st so we are charting headaches and sleep patterns until then to see if we need to reprogram the shunt and if so which way we need to go.  We would rather do one educated reprogramming than guess and have to keep reprogramming her shunt.  So after an eventful 48 hours we are home and trying to get back to what ever it is we consider normal.  She is doing pretty good, still a little extra sleepy but we will know more August 1st.  I love that our doctor is jumping in and making decision at the drop of a hat but it still leaves us guess on what comes next.  Yet I will take this life over our life a year ago any day.  We will find our what is wrong and it will get fixed we know that much.  Thank you for all your prayers.