Our adventure into raising a child with Hydrocephalus. All the highs, lows and tired ramblings of a mom watching her child fight an incurable brain condition.
Wednesday, June 5, 2013
A crazy month...
This last month has been crazy around our house. I decided to go back to work, was supposed to be part time ended up full time. We have had a hospital stay in which we have started to discuss another shunt revision. Her shunt is working but isn't preventing the over draining as we had hoped it would. So her neurosurgeon wants to look into a different shunt and hope we get better results. We see him the 12th of June to discuss what type of shunt we will be changing to and schedule surgery. Right now Kat is taking narcotics to help with the constant migraine that we can't seem to get rid of. For this mom June 12th can't get here soon enough. I just want her to feel better and to be 100% again. We are also looking at putting on an Anti-siphon devices to help prevent pressure changes when she changes position. I will try to keep everyone updated on what is happening even though between work and taking care of the kids that seems to be a daunting task.
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