Katana's Neurosurgeon Appointment

I am a little late updating this. We saw Katana's new neurosurgeon on Wednesday. He was amazing. He walked in the room and started talking to us about what we have been going through. It didn't take me long to realize he hadn't seen her scans yet, I was amazed. He wanted to know how she was doing, what she was going through, and what we were seeing as concerns before he saw her scans. Then while he was in there with us he looked at her scans and saw where her right ventricle has been very small for quite a while. He confirmed what we had thought, Katana's shunt has been over draining for a while. We had already tried the first two options he gave us, which were waiting to see if the shunt would start to function properly again, and trying medication to control the headaches. Neither of those had worked so our third option was doing surgery to replace the valve on her shunt. We asked him what he would do if it was his child. Would he try a different medication, or do a valve replacement. He told us honestly he would do a valve replacement. So the three of us as a team decided to replace Katana's fixed valve with a programmable valve. He told us as long as he got in there and her shunt was working he wouldn't replace any of the tubing just the valve. So she will only have one small opening on the right side of her head instead of the big head incision and the abdominal incision. He is optimistic that he won't have to replace the tubing because we can tell the shunt is draining it is just draining to much. We don't have a date for her valve replacement yet but we should have the date early this next week. We are relieved that finally someone has listened to us and is trying to do what is best for Katana. We know it will be a long process to get her shunt dialed in correctly but we are willing to put in the time and effort to do that if it will help Katana feel better in the long run. Thank you all for your continued prayers and support through this.