Our adventure into raising a child with Hydrocephalus. All the highs, lows and tired ramblings of a mom watching her child fight an incurable brain condition.
Sunday, January 8, 2012
Can we Fast forward.
I am normally the one wanting to slow down time cause my kids are growing up way to fast for me. Today I am really wishing we could fast forward time to the 31st. Katana had a horrible night last night. She hasn't had such a long night in a while. She was up and down last night crying with abdominal pain and a headache that wouldn't go away. Medicine didn't help at all. So after a long night for both me and her I am ready now more than ever for her to have surgery. I am holding out so much hope that her new shunt will make her feel better. Hoping that when they adjust the distal catheter on her shunt it will help with the abdominal pain, her doctor believes that her distal catheter may just not have room to pull freely and is going to try to loosen it up when he does surgery. 25 more days. I feel like a little kid waiting for Christmas morning. The best possible gift I could receive this year would be for Katana to have drastically less pain then she has the last few months. Who in their right mind would ever think as a Mom I would be counting down the days till my daughter underwent surgery but I just can't wait for her to be in less pain.
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