Monday, April 2, 2012

Amazing Doctors amaze me.

Most of us are used to having routine test ran and waiting and waiting for answers.  Well we are no different. We are used to waiting. Yet today Katana had her routine MRI to make sure her new shunt had expanded her ventricles.  I figured we would be getting the results Wed or Thursday.  I guess I tend to forget that we finally have a neurosurgeon who is passionate about his patient's care.  He wants us to know as soon as possible what is going on, he wants us to be directly involved with her care every step of the way.  We were driving home tonight when the neurosurgeons office calls.  I was nervous picking up the phone, fully expecting something to be wrong.  When his nurse told me that Dr. Igbase just wanted us to know the MRI looked great, her right ventricle was no longer collapsed and her ventricles were exactly where he wanted them to be I was in shock.  As I said thank you I had tears streaming down my face.  A feeling of this was almost to good to be real washed over me.  Was this nightmare we had lived for the last 4 years really over??  You mean I wasn't dreaming the last 9 weeks of our new life??  I have physical proof that she is better??  I don't think my brain could even process all the emotions that went through me.  We have lived our lives around her headaches for so long that part of me couldn't believe it was truly over.  But it is, this last 9 weeks has been the start of our new life.  No more having to watch our five year old live in chronic pain.  Finally someone listened and did something beside pat us on the back of the hand and tell us we were lucky that her shunt was draining at all.
 So this is Katana's MRI's They are labeled with the month.  January's was done before her revision and April's was done today.  The white in the middle of the brain is the fluid in her ventricles.  You can actually see that she has fluid in both sides now!! It is amazing what a properly working shunt will do for a child!  I am so relieved that Katana is doing so much better.  I can't wait to see what the future holds for her!

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