Waiting again...

I hate that word.  I know Hate is a strong emotion and I don't hate many things, but I hate waiting.  I once again feel I have been  that we have been thrown into a whirlwind.  I am praying it is short lived and that the answers will be found soon.  Tuesday night Kat had another headache accompanied by a tummy ache. So we cuddled on the couch until she fell asleep in my arms.  I got up and sat beside her on the couch since I couldn't fall asleep.  I hate those sleepless nights, but today I am thankful I didn't fall asleep.  About a half an hour after she fell asleep Kat had what appeared to be a seizure.  Her whole body tensed up and shook, no matter what I tried I couldn't get her to wake up and snap out of it.  It only lasted 15-20 seconds but felt a little more like a lifetime.  Then she finally opened her eyes, she looked at me with a look of pure panic in her face.  She was scared, confused, and crying.  It took her a little bit to come around and settle down.  Then she was purely exhausted.  So we ran her to ER where they did a CT scan and Blood work.  The CT showed some minor changes in her vents and the blood work was all over the place.  So the ER called the neurosurgeon, and they wanted to see her ASAP in Kansas city, but they were ok with us driving her as long as we were comfortable doing so.  So we loaded up in the van and off we went to Kansas city.  We went to the neurosurgeons office where they looked at everything.  They ruled out the shunt being the cause of the seizure (thank God), but wanted us to take her to ER at Childrens Mercy to see if they could find the cause of the seizure.  So we went into ER. We waited and waited and waited...different doctors came in and out not saying much but checking her neurological status over and over and over again, I think they checked her neuros 6 different times. Then a surgery consult walked in, we were confused since we new neurosurgery had no intentions of doing anything.  When we asked what was going on they told us they were checking her shunt, really we already ruled out her shunt being the issue, so my patience boiled over.  We had waited three hours to be told what we had known 3 hours earlier.  So then they proceed to tell me that they are just going to schedule her an appointment with a neurologist and we would have to come back and see them.  Really you mean we sat here for three hours to be told they would schedule an appointment.  She already has a neurologist whom we love and we had no intentions of changing neurologist, which I had made very clear to the first doctor I talked to in ER. So after telling off three different doctors we still have no more answers as to what caused her seizure or if it was an actual seizure at all.  We wait for her neurologist to decide which test they are going to run and what the next plan of action is.  Yesterday Kat slept most the day, she was awake for one 3 hour stretch and a few 30-45 min stretches, totaling about 6 hours awake and lots of time asleep.  So far today is a little better, she isn't sleeping near as much and seems to be feeling more like her old self again. I am praying the next few weeks will bring answers.