A long time.

I know it has been a long time since my last post.  We have had a busy end to summer and an extremely busy start to the new school year.  We are LOVING home school.  All the kids are doing amazing.  Katana is picking on up on things that she never could get the hang of last year. She is even starting to pick out sounds in words are beginning to read.  It has been so exciting to get to be her teacher this year.

Onto her shunt, she had been battling headaches since our flight to Kansas city in July.  They had become the ones that stopped her in her tracks and left her laying in a dark room crying in pain.  Her Neurosurgeon requested that she see a headache specialist to rule out migraines before we adjusted her shunt.  So we saw the headache specialist the first of this month and she really didn't think Kat's headaches were all "migraines" and believed that we were once again dealing with at least some low pressure headaches.  So we went back to Dr. Igbase and he willingly adjusted her shunt to slow it down.  So we changed her setting from 100 to 110, which confused me at first because I wrongfully assumed that the bigger the number the more fluid the shunt pulled off. When in reality the higher the number the more pressure the brain is expected to endure before the shunt starts pulling fluid off.  So now we wait.  Dr.Igbase has told us from the beginning that his fear is that Katana's perfect setting is in the rage of 105 which you can't set her shunt to, so we may end up having to bounce back and forth between 100 and 110 to keep her headaches under control and keep her pain free.  Yet we are hopefully that he may be wrong and that 110 may be her perfect setting. We won't know for sure for a couple more weeks.  We go back on Halloween to see how she is going and if her headaches are still under control.  If the headaches start sneaking back before then than we will know that we are probably going to end up jumping shunt settings every few months.